Summary
For years, we didn't know what to call it. Some doctors used the term chronic fatigue syndrome. Several used the term fibromyalgia. More than a few looked at us skeptically. Perhaps that's what hurt the most. I now have eight or 10 journals containing what the doctors said. But our girl wasn't getting better. That's what mattered most to me, her mother.
In the course of eight years, we saw infectious disease specialists for numerous infections. We saw endocrinologists for the fatigue. We saw rheumatologists for the muscle and joint pain. We saw cardiologists to rule out heart involvement. We saw skin doctors for the recurrent rashes. We went to ENT's for the sinus problems. We went to a podiatrist for the foot cramps. We saw alternative medicine docs for the unexplainable symptoms. We saw Lyme specialists for the increased titers, the bull's eye rash. We also saw neurologists for the brain fog.See the full content of this document
Extract
Sentimental Journey an Answered Prayer
At times, I was afraid to answer the phone. What if the test they took showed something dreadful? My family and friends often as...
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